You are stronger than you think
If you have read my previous posts where i have spoken about medication, you'll know that I use. An alarm and 'normally' write down when I have taken my tablets. However this morning was a whole differnt story...In this post I shall be talking about remebering to take medicition, or in my case forgetting and the feeling of fear that you have forgotten to take it.
So my normal routine is wake up, check my phone, go to the bathroom to take my medication and then go have breakfest. However this morning - I woke up went to my bathroom, went to toilet. Then the next thing I remember is walking into the kitchen. My mind blanked out what happened inbetween going to the toilet and the kitchen. Which is when I would normally take my tablets. So I questioned did I even take it this morning as I dont remember? But I cant just go take a dose incase I did take it? But as we all know my memeory isnt great...
Therefore this lead me to go into panic, and fear. I have managed to successfully take my medicaiton for 10 years, always at the right time even when I have been away on party holidays and crazy events. So how did I manage to on a normal december day forget to take it. So frusted how my memeory just goes.
Next I called my doctor and he advised that I didnt take any medicaiton until my night dose but make sure I rest, eat and am watched all day. As due to the likelyhood of not having my morning dose I was much more likely to have a seizure. Which is terrifing as I have spent the last few years relaying on my medcaition to control my sezuires and let me lead a 'normal' day to day life. So today I felt like a day of stepping backwards but really I have learnt a huge lessons for me.
Buy a medication orgainser - Today I have ordered a medication orgainser, therefore I will always know if I have taken my tablets or not. Which is my main point in this post as today is such a scary day for me. I have spent the whole day in fear and frustration. As I feel like I have just been waiting for a sezuire to come. So I strongly advice a orgainser. Even with my alerts, when it comes to having bad memory problmes I have learnt that isnt reasuring or safe enough.
So fingers crossed I will be well for the rest of the day and counting down the hours until I can take my medication! And need that organiser to arrive ASAP!
I have to be honest this post is going to be a bit differnt to my previous posts. As it is not so much me giving advice, its more voicing an opionion and sharing my story of loosing someone close to you due to epilepsy. Therefore I hope this can help others to relate to. Who have or are going through a similur situation.
Three weeks ago yesturday I got the horrfic news that one of my very close family friends, had suddenly passed away due to epilepsy. He was only 27. When I first heard the news I sobbed and screamed with the pain and anger of how such a loving, caring and young guy could just be taken so suddenly.
It made me and still makes me so so angry that epilepsy can do this to someone and his family. Seeing what they're going through is heart breaking. I have never ever felt pain like it, you feel like your body is eating you up inside. A constant feeling of sickness and darkness . Sometimes this disappers but then suddently the feeling just hits you again.
Due to what has happened, it had made me realise how lucky I am to have my epeilpsy controlled at the moment. And that I and others really need to just apprciate every day and every breathe that we take. As life is so precious! However it also does scare me, as someone so close to you can just go so young, and suddenly from the same condition is terrifing. But it has made me so so much more determind to live my life, do everything and anything that I want to do. And made me aware of what is really important in life. So please please, apperciate what you have, your family, friends and your health because that is so valuable.
My self and his family are going to create fundrasing events and try are hardest to raise arwarness for this awful conditon. Therefore in future posts I will be disussing any events or sponsering that shall be happening.
WE NEED TO RAISE AWARNESS, RAISE MORE MONEY TO MAKE PEOPLE MORE AWARE AND GO INTO RE-SEARCH. SO THESE BEAUTIFUL PEOPLE, WHO DESERVE SUCH A LONG LIFE AHEAD OF THEM ISN'T SHORTENED.
Hi welcome, to my blog! Come follow my journey and read my experiences of living with epilepsy.