You are stronger than you think
Living with epilepsy it is unpredictable, you could wake up feeling fabulous or wake up feeling like a brick has hit your head. And of course you never know when a seizure is about to hit. For me personally the biggest difficultly is sleep, if I have a bad night sleep I then have to cancel what ever plans I had the next day, as I wake up feeling spaced out and at a high risk of having a seizure. Therefore all I can do is rest and get an early night. These next few paragraphs is how it affects my family and friends. And advice on how I think you can help the situation.
I have missed out on a lot, lost friends and even a boyfriend over my epilepsy. This is all due to not being able to attend social events, them not understanding or not going ahead with plans that have been made. But I know that my true friends will not care if I cancel last minute, as they understand. And they know that I will re-arrange to see them a day later or so.
I think how to deal with the friendship aspect of it, you just have to be strong and realise they're really not worth your time or sadness if they are not patient or understanding towards your condition. If you are epileptic or have anxiety you need people around you who understand, and are supportive to be with you through the difficult times but also be there when you're thriving.
Yes, I have lost friends over the years due to what comes with my condition. However I have the most amazing friends surrounding me, and I know I am so lucky to have them. They allow me to do the 'normal' things a girl my age would do, go out and go travelling with them - for example. This therefore allows me to forget about epilepsy, and live life to the full. This is due to how I have explained to them what epilepsy does and how it makes me feel, to give them a full understanding. Epilepsy truly, finds out who your real friends are which I think is a good thing, as a lot of people don't realise they're surrounded by fake people.
Family I could talk forever about ; I have seen my family go through the whole journey with me, since my diagnosis. I have seen the pain on their faces, the look and words my mother has given me in the past - with her saying "she wishes, and would do anything to take this all away from me".
Not only will it change your life being diagnosed with epilepsy it will change your families dynamic. Not in a bad way though, we have become closer, stronger and appreciated life so much more since being through the 'hard times'. The family life has adapted over the years. As they have to understand that plans may change last minute, the worry of when is the next seizure going to happen, when are we going to have to take her to hospital next. But once you have your come to terms with your epilepsy and control it, the family environment settles so much. You will develop such a strong environment for yourself and family to be in.
I know the feeling of hating what is happening to you, which forced me to push my family away from me. As much as they where trying to help me in any way possible. But I know if they hadn't of been there for me I wouldn't of got through what I did. And even to this day they are still so amazing and supportive if I am having a bad day, we talk and relax until I feel better. The advice I can give is let them understand as much as possible, talk to them about it. As I know its scary but they want to help and its so much less scary doing it all alone.
Hi welcome, to my blog! Come follow my journey and read my experiences of living with epilepsy.