You are stronger than you think
In this post I am going to be talking about my story of telling my friends and how I think the best way to explain the condition is to make people understand it as well as possible.
When I was first diagnosed I didn't tell anyone about my hospital appointments, my diagnosis. The only people that to my knowledge knew where my family. However obviously my closest friends knew something was up as I was missing a lot of school, due to hospital appointments and feeling unwell. But back when I was eleven I was confused about my condition, I didn't even understand what was happening so how could I explain this to someone else?
It took me a good three/four years to start understanding and accepting my condition which therefore meant I was ready to talk to my closest friends about it. These where my best friends, who'd Id been friends with since I was a toddler. When I told them, they where supportive and caring. Wanting to help in anyway possible and have continued to be like this 6 years later.
One major thing I have learnt since being diagnosed, is you really find out who your true friends are. The ones which have stuck with me through my darkest and hardest times, I appreciate so much. I strongly believe its not how many friends you have its the quality of the friendship. Also when you're going through a difficult stage in your life its so important to have your friends around you to support you.
How did I explain it?
I told them the facts about my seizures, what happens during the seizure. Also my triggers so I need to get enough rest and sleep, also not getting too stressed. An important aspect to tell them is what to do when I am having a seizure so they don't panic when you're having one and they're prepared.
I think the most important thing is make them understand as much as possible. Also because I use to have really bad anxiety. I also explained how that made me feel, so if i didn't want to attended a sociable event it wasn't because I was being anti-social it was due to how my anxiety was making me feel.
I am fortunate to have the most amazing and supportive best friends, who have been on a journey with me.
I know its difficult talking about it to people but honestly talking about it to the people closest to you will help you hugely.
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